Wednesday, April 25, 2012

Ellie's Story

Ellie
Age 6
The Children's Hospital at Providence
Acute Lymphoblastic Leukemia

Ellie counts running around and playing outside as two of her favorite activities. In fact, it’s not unusual to find her digging in the dirt while wearing a tutu. Two years ago, this spunky girl had to switch her tutu out for a hospital robe with her diagnosis of acute lymphoblastic leukemia.

While other kids explored outside, Ellie spent months in and out of the hospital. Her bone marrow couldn’t produce the white blood cells necessary to fight off infections. Also facing tumor lysis syndrome, which caused her kidneys to fail, Ellie has undergone kidney dialysis and she continues to receive chemotherapy.

No stranger to her hospital’s halls, Ellie knows all too well the challenges sick kids face. Her bright personality is nonetheless hard to resist, even for celebrities like Elmo and Super Grover, with whom she has appeared on the news. The spotlight just seems fitting for this camera-loving life force.

Children's Miracle Network Hospitals Champions

Champions is a Children's Miracle Network Hospitals program that brings attention to the important work being done at its 170 children’s hospitals. It does this by honoring 54 remarkable kids who have faced severe medical challenges, and helping them tell their stories.

The Champions program designates a child in every state who has bravely battled a serious injury or illness. The Champions represent the 17 million children treated at Children’s Miracle Network Hospitals every year. The 2012 Champions have dealt with a wide variety of injuries and illnesses including genetic diseases, organ transplants and traumas, as well as various types of cancer.

The Champions travel for a week in September, first to Washington, D.C., where they traditionally meet with their state representatives on Capitol Hill and visit the White House. They then take a private chartered flight, provided by Delta Air Lines, to Orlando, Fla. While there, Champions meet Children’s Miracle Network Hospitals corporate partners, hospital representatives and media partners. These groups convene to celebrate a year of medical miracles during the Children’s Miracle Network Hospitals Celebration event at Walt Disney World Resort.